Speechtherapy in Ladakh, August 2009

Report from Marika Zenglein about her speech therapy for REWA

Even before I started my trip, I was asked many times how I intend to do language therapy in the Ladakhi language. And to be honest, I also asked myself: How will it work? What exactly can I do? What will happen?

Throughout my studies I naturally acquired a somewhat different perspective of the area of work and so I coarsely mapped out the expected problems in my mind.

A very altert patient

I was fortunate to have acquired some valuable experience within my professional field while working in Bangkok. Thailand is also not exactly the country of the standardized language diagnostic procedures. But Thailand is a medically advanced country, full of perfectly equipped and specialized doctors, who in turn work in modern hospital centres. They have the resources and facilities to do a large number of basal investigations.

Speechtherapy with painting exercises

Ladakh, however, has taught me the other side of the story. There is neither the possibility for advanced investigation of ear, nose and throat problems, nor a profound knowledge of the problems disabled children have with language, speech and voice. In addition, we face repeatedly lack of acknowledgement of language disorders amongst the locals, and sometimes quite vague notions of my possibilities as a language- and speech therapist. When I was in Germany I already knew that there would be litttle reliable diagnostic and therapeutic material in Ladakh, so at least in this area I had a somewhat realistic idea.To some degree this is understandable. This is India, a completely different world with its own rules and mechanisms.

Marika with one of her patients

In addition we face the problem with Tibetan medicine, Tibetan healers, known as Amchis. Among the local population Amchis seem to be a very prestigious institutions. In any case, they often put more confidence and faith in Amchis than in the western medicine. The healing of Amchis is based on the search for the mental poisons of wind, phlegm and bile. I think it's beautiful and sometimes even admirable, that tradition and faith are always so present. But when I work with the people I was quite astonished to hear the family announce with full fervour, that an autistic girl of 16 years, who never spoke one a single word in her life, with 18 years of age will certainly begin to speak fluently, because the Amchi had predicted it.

Blowing bubbles, a important exercise

For other children we also fight a battle on fields of ignorance and distrust. For example lets use little Dolma (name has been changed). Dolma is well over three years old and was born with an open cleft palate and many other disorders. It has already been operated on three times, unfortunately, without significant success. But the father refused to consult another doctor. In such struggles my hands are tied, even though I was incredibly sad. I have no other choice but to teach the mother to give the girl only certain foods and to avoid others so at least the choking will be minimized. I still do not know whether it is actually implemented in practice.

Stimulation of the muscles

I always stumble across very vague ideas of what I can do to help the children. I have been introduced to a number of deaf children and I was asked to please see to it that they hear and speak properly. Alternative methods of communication have been rarely accepted. But, unfortunately, a speech therapist is not Superman, even if I sometimes wish to be just that.

Nicola explains breathing techniques

Even if these experiences are sometimes tedious and make me feel helpless like a little Don Quixote unable to win the fight against the mighty wind mills, there is also another side that is driving me to keep on going and not despair. Because there are a lot of locals who are always supportive and kind. There are colleagues that strengthen with the cooking of a loving hot soup, there are tourists in transit who listen, give advise and share a valuable piece of their knowledge and skills. They all eventually become friends and we share countless evenings with precious conversations and fellowship.

Speechtherapist from Switzerland travelling through and extend their helping hands

One of the local pillars of my work is mainly Chuskit. She is supposed to carry on my work when I leave. REWA plans to send her to a special school in Delhi to learn more about speech therapy. With her gentle and quite approach Chuskit has become my voice in therapy and has a very pleasant and positive impact on our patients.
My German colleagues are now four volunteers: two physiotherapists, an occupational therapist and a designer. We, all the ladies that live together, share our life, work and evenings. And I will not forget to mention the travellers in Leh. I would never have expected to meet some nice healing language therapists from around the world to offer their knowledge and experience to our organisation, as they randomly drop in to help. For example like Beatrice and Dominic from Switzerland, who thought me a stimulating massage for the muscles involved in speech and nerves. Further we ran into Carolina from Panama and her husband Nicola from France, who helped me with some of their own methods of respiratory apnoea from the field of deep sea diving. They also gave me numerous tips about speech therapy in general. Enriching experiences like that are wonderful for me.



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